ResearchPosted on rand.org Oct 17, 2024Published in: Journal of the American Medical Directors Association, Volume 25, Issue 11, 105266 (November 2024). DOI: 10.1016/j.jamda.2024.105266
People living with Alzheimer's disease and related dementias (ADRD) experience treatments that are burdensome, costly, and often do not align with their goals. Although receipt of goal-concordant care is considered a criterion standard outcome of patient-centered care in serious illness, it remains difficult to measure, especially in pragmatic clinical trials in which outcomes are typically ascertained using real-world data from administrative or electronic health record (EHR) sources. We sought to develop an innovative, pragmatic approach to identify goal-concordant care among nursing home (NH) residents with ADRD using existing EHR data from one large NH chain for future use in pragmatic trials.
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